From small books come great things.
I don’t think that is a quote from anyone famous, but it is something that does happen.
Something that has happened to me.
Life doesn’t always go the way you planned.
Ask me where I would have been ten years ago and I would imagine I would have three children at school and I would be working back in London.
Things didn’t go quite like that.
I have two great sons who are happy and make me smile and laugh everyday.
I am married to my soul mate and we are still going strong after many years.
I love my life.
But we live in Devon.
We have a boat and a great time.
I work in my pretty outside office where I work with my dog in her bed waiting to go for a walk on the beach.
No commute, just a school run past the sea and up to the moors.
No third baby came, not because I didn’t want one but because I couldn’t go through hip dysplasia with another child.
I don’t think any of use could have dealt with another diagnosis, a baby in a harness, a toddler in a cast, hours and hours of surgery followed by weeks and weeks of recovery.
But, that doesn’t mean I don’t still go to London.
I don’t always got to the capital for my real job as a PR, but in my role as a campaigner, a mum on a mission who set up DDH UK. A woman who is determined to change the world of hip dysplasia and make sure there is the awareness, education and support that is needed and is still so sorely lacking not only in the UK, but around the world.
There is no denying the medical institutions like the NHS do an amazing job, but I believe that together, we can do more.
On Friday I joined a meeting of world-class Orthopaedic Surgeons and Fellows as well as support staff, midwives, OTs as well as patients and parents who all want to make a difference.
They knew who I was because of Lucas and because of Cast Life and because our journey, like that of so many people I have met over the past decade who I now call friends, is ongoing.
No, I don’t have DDH, but I know what it is like to live with someone who does, and I know how it feels to take your child to theatre time and again to be broken and remade just to get the body they should have been born with.
As I sent an email to a surgeon at another hospital a reply to his email about another project, I sat and talked about the changes I think we need to see.
The decisions that need to be made.
The steps that need to be followed.
The guidelines that need to changed.
The vital checks that need to be made to ensure this life changing condition doesn’t keep being missed and not only causing decades of pain but also loss of mobility and earnings as well as socialising and living a normal life.
The Government today talk of the extra funds being made to the NHS and I wonder, if we calculated just how much Lucas has cost in surgery, versus a simple harness being worn from birth when a ‘click’ was detected, just how many thousands, even hundreds of thousands of pounds would have been saved?
I am hoping that the study I am taking part with make a difference.
I hope that by the time I am a grandmother, that every baby will be checked as a matter of course, not just because the family have the knowledge that we have.
Life throws something at us all.
We can choose to let it ruin us or we can choose to take what is given to us and use it in a positive way.
I won’t let DDH define my son, my beautiful boy who is trying out a new football club this week and playing cricket for his school on Wednesday, but I will tell him that he is the reason why changes are happening and why thousands of people around the world no long struggle alone.
He is the reason for Cast Life and he is the reason for change.
If you can make a difference in this world, however big or small, do it, because you never know where it might lead.
From small books come great things, so I can’t wait to see what my next book brings.